What death doulas can teach us about dying
For Rita Ball there's nothing more meaningful than holding a person's hand in their final moments.
"It is absolutely raw," Ball says, "to witness this life that is leaving the world. "
She's been there at someone's last breath multiple times. For three years, Ball has worked as a trained "death doula" in London, and as a non-medical end-of-life companion she supports individual families and volunteers in care homes for the NHS.
"I hear a real sense of relief when I say it's OK to hold them, kiss them, play music, talk to them. "
You may have heard of doulas who help mothers during pregnancy, childbirth and early parenthood.
Depending on their level of training a doula can cost between £25-£45 an hour, according to Clare.
However, some may offer their services free of charge.
"Sarah was just amazing with me while I just sobbed and sobbed in her kitchen," Behrens says.
The doula encouraged Behrens to broach difficult questions with her dying husband - including where he wanted to be buried and what he wanted his funeral to be like. And she helped her navigate the "death admin" of contacting undertakers and registering the death.
While Parker mostly ended up being a source of support for Behrens, she also supported her husband. And she remembers Parker carefully explaining the process of how the body begins to shut down during the final days of life.
"Even though it doesn't take the pain of it away, it kind of normalises it. " Like the other doulas we spoke to, Clare believes people today have "lost a lot of knowledge about ordinary death". She says most people's idea of death comes from dramatic scenes in films or a sudden death. By explaining the physical process of dying in as much detail as people want, doulas help remove fear, she adds, unlocking time that could be spent more meaningfully.
For example, Parker explains, when people are dying their body temperature and breathing changes.
"At the end there can be a death rattle - a sound of hard breathing that can be frightening for people in the room," she says. "If you've already told them to expect it, it can feel easier. "
She recreated an imaginary garden for them by bringing in pictures and lavender oil, playing the sound of birdsong and describing a walk through lavender fields. End-of-life doulas often provide support even beyond death. Ball says she's visited funeral homes on behalf of families to relay messages and has helped organise memorial services. Others spend time in the community raising awareness, including holding death cafes to "open up conversations" over tea and cake.
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